Robin

Robin

Robin has Freidriech’s Ataxia, a form of Muscular Dystrophy. She is 22 years old and lives in Georgia. Robin has been permanently in a wheel chair since March of 2000. Her insurance paid for the cost of the wheel chair which totaled $2300. July of 2002, Robin received her first power wheel chair. Through 2 different funding sources, her $13,000 power wheel chair was paid for. Unfortunately, insurance companies do not pay all of the cost to keep Robin safe and healthy. Listed below are a few of the many things that are not covered or partially covered by the insurance companies:

Chiropractic Care for the curvature in her spine

Additional Medical Expenses and Medications due to the disease

Fitness Gym Fees to keep the muscles strong and to prevent muscle deterioration

House hold equipment to make her life easier like additional hand rails, bathroom equipment and stair lift

Transportation Issues – heavy duty special van with lift for power wheel chairs or a large automobile to store a manual collapsible wheel chair

Education Issues

Eventually In-Home Care cost while her single mother works Cost of a house being handicapped accessible

Many families deal with these issues everyday. Robin’s family is not unique because of these issues. They just do the best they can to make it through the issues as many do. This web site www.wishes4me.org is to help with some of the cost for as many physically challenged individuals as possible.

ROBIN’S SPEECH

Hello!

For all of y’all that do not know me, my name is Robin Cheatwood and Lynn Robinette is my mother. My mother had a dream. Just like Martin Luther King JR my mom’s dream was to see a world where all people have an equal opportunity to live in a world with equality. Think about it. Most people on Earth can walk and move about on their own willpower. If two people get into an argument it is easy for one person if they get mad at the other to just walk away and head up a hill. But what if they had to rollaway up that hill? Most people don’t even realize how easy they have it. Well, my mom had a dream, to make day to day life easier on individuals with physical challenges; to remove barriers to living on their own. She wants people with physical challenges to be treated equal to everyone else.

I am now 22 years old. When I was first diagnosed with the disability I carry I was 12 years old. The doctor asked my mom if she wanted to give me up for adoption. (My mom will probably deny that, but I remember because I was in the room.) Instead of giving me away, my mom instead never gave up on me. She is and was always there for me. Although, I am wondering why she is giving me away now. I guess she realizes that now it is time to launch me on my own. Thank you Mom for believing in me, for not giving me away until the right time, and for teaching me how to dream.

My Mon wants the best for me. She wanted me to be around other people because she knows that I love to be around people. I thrive on being around others: living with others, growing with others and learning from others. This is not an option, I did not chose to thrive from others existence; it just my way of life. I like to make people smile and laugh; I like to comfort people, as they need it, mainly I like people! Mom knew that I would need a safe environment (those that know me might tell you the only safe environment for me is a padded room). I was in the bathroom at home once (the bathroom is not handicapped accessible) and I was standing up, pulling my pants up and I fell on the floor. I hand nothing to grab onto and my ft kept slipping. Four hours later I finally made it; I got back in my chair. Then, when I told mom, she yelled at me for not having a phone in my wheelchair that I could have grabbed and called someone to help me. My mom also wanted to make my life easier. She thought, “I bet there are more people that I could help while I help my daughter.” My brother also has a disability. Being a single mother of two is hard enough, both of the children having disabilities is even harder. My mom is always concerned about our safety.

I would like to say thank you to the many many people who have helped this dream come true. My mother, who had this dream; all the way down to the people who help keep this dream in the future. Even the smallest things people can do to help will mean the world to me and others who have it just a bit tougher. My good friend, Amber, told me that she feels bad because she has not been able to help at the house because of her work. We have not even been able to see one another lately. Yet, we went out this past Wednesday, I hope she knows that meant so much to me. We went shopping for stuff for this house. I am just like any young people moving into their own space and place. I want to be away from my mom. Most young people cannot wait to turn 18. I new I would be living at home with mom after I turned 18. I just did not know that I would ever be able to live away from mom. This is every young persons dream. It just took a while for this dream to come true for me. Another friend, Ammie, has come a few times to help modify this house. I would like to thank all of you who have come out and made this possible. From the bottom of my heart: THANK YOU so much!