Robin

Robin

Robin has Freidriech’s Ataxia, a form of Muscular Dystrophy. She is 22 years old and lives in Georgia. Robin has been permanently in a wheel chair since March of 2000. Her insurance paid for the cost of the wheel chair which totaled $2300. July of 2002, Robin received her first power wheel chair. Through 2 different funding sources, her $13,000 power wheel chair was paid for. Unfortunately, insurance companies do not pay all of the cost to keep Robin safe and healthy. Listed below are a few of the many things that are not covered or partially covered by the insurance companies:

Chiropractic Care for the curvature in her spine

Additional Medical Expenses and Medications due to the disease

Fitness Gym Fees to keep the muscles strong and to prevent muscle deterioration

House hold equipment to make her life easier like additional hand rails, bathroom equipment and stair lift

Transportation Issues – heavy duty special van with lift for power wheel chairs or a large automobile to store a manual collapsible wheel chair

Education Issues

Eventually In-Home Care cost while her single mother works Cost of a house being handicapped accessible

Many families deal with these issues everyday. Robin’s family is not unique because of these issues. They just do the best they can to make it through the issues as many do. This web site www.wishes4me.org is to help with some of the cost for as many physically challenged individuals as possible.

ROBIN’S SPEECH

Hello!

For all of y’all that do not know me, my name is Robin Cheatwood and Lynn Robinette is my mother. My mother had a dream. Just like Martin Luther King JR my mom’s dream was to see a world where all people have an equal opportunity to live in a world with equality. Think about it. Most people on Earth can walk and move about on their own willpower. If two people get into an argument it is easy for one person if they get mad at the other to just walk away and head up a hill. But what if they had to rollaway up that hill? Most people don’t even realize how easy they have it. Well, my mom had a dream, to make day to day life easier on individuals with physical challenges; to remove barriers to living on their own. She wants people with physical challenges to be treated equal to everyone else.

I am now 22 years old. When I was first diagnosed with the disability I carry I was 12 years old. The doctor asked my mom if she wanted to give me up for adoption. (My mom will probably deny that, but I remember because I was in the room.) Instead of giving me away, my mom instead never gave up on me. She is and was always there for me. Although, I am wondering why she is giving me away now. I guess she realizes that now it is time to launch me on my own. Thank you Mom for believing in me, for not giving me away until the right time, and for teaching me how to dream.

My Mon wants the best for me. She wanted me to be around other people because she knows that I love to be around people. I thrive on being around others: living with others, growing with others and learning from others. This is not an option, I did not chose to thrive from others existence; it just my way of life. I like to make people smile and laugh; I like to comfort people, as they need it, mainly I like people! Mom knew that I would need a safe environment (those that know me might tell you the only safe environment for me is a padded room). I was in the bathroom at home once (the bathroom is not handicapped accessible) and I was standing up, pulling my pants up and I fell on the floor. I hand nothing to grab onto and my ft kept slipping. Four hours later I finally made it; I got back in my chair. Then, when I told mom, she yelled at me for not having a phone in my wheelchair that I could have grabbed and called someone to help me. My mom also wanted to make my life easier. She thought, “I bet there are more people that I could help while I help my daughter.” My brother also has a disability. Being a single mother of two is hard enough, both of the children having disabilities is even harder. My mom is always concerned about our safety.

I would like to say thank you to the many many people who have helped this dream come true. My mother, who had this dream; all the way down to the people who help keep this dream in the future. Even the smallest things people can do to help will mean the world to me and others who have it just a bit tougher. My good friend, Amber, told me that she feels bad because she has not been able to help at the house because of her work. We have not even been able to see one another lately. Yet, we went out this past Wednesday, I hope she knows that meant so much to me. We went shopping for stuff for this house. I am just like any young people moving into their own space and place. I want to be away from my mom. Most young people cannot wait to turn 18. I new I would be living at home with mom after I turned 18. I just did not know that I would ever be able to live away from mom. This is every young persons dream. It just took a while for this dream to come true for me. Another friend, Ammie, has come a few times to help modify this house. I would like to thank all of you who have come out and made this possible. From the bottom of my heart: THANK YOU so much!

Mindy

Mindy

January 30, 1981, I was born at Grady Hospital in Atlanta. I was the perfect red hair, brown eyes baby girl so they thought. I did have a Heart Murmur but that’s nothing MAJOR. In 1992, I was running around, playing outside, getting dirty and staying in trouble as a normal 11 year old little girl. In 1992, I kept having tonsillitis a lot. So, I went to Barrow County Emergency Room where they took a chest x-ray and saw that I had an “S” shaped spine so they sent me to an orthopedic doctor. The doctor diagnosed me with scoliosis which is a curvature of the spine. He then saw that my feet had a high arch. So I was then referred to a Neurologist in Atlanta. In March of 1992, the Neurologist asked me to walk down the hall. My reflexes were tested which I did not respond to. Once the evaluation was completed, the doctor dismissed me so that she could talk to my mom about my condition. At that time, the doctor informed my mother that I had Freidriech’s Ataxia, a progressive neuromuscular disease. It causes your muscles to waste away. The doctor further stated that there’s nothing we can do and there is no cure. She’ll be confined to a wheelchair by the time she’s 30, and if that little boy out there is her blood brother there is a 50 percent chance he’ll have it too. The ride home was so quite… We got home I said “Mama are they going to cut my legs off.” she said “NO, Baby”. When we told my family they were shocked and Grandpa said, “No, she’s just lazy!”

In the next 2 years, I had found out that my scoliosis had got so bad; my spine was twisting and pushing on my heart and lungs. March 8, 1994, I had a Spinal Fusion at Eggelston where they put steel rods on each side of my spine. The surgery was suppose to take 8 hours but instead it took 12 house and 8 hours in recovery. The very next day they had me get out of bed which was very painful. Ten days later, I was able to return home to my Grandparent’s house. At that time, my grandpa had advance stages of lung cancer. My last memory of Grandpa was when I was walking up the stairs to the front porch of his house after surgery with my walker. He was sitting in the rocking chair with his oxygen tank. He says to me, “Let’s go square dancing.” So more or less we kept each other company, he became my best friend. On April 15, 1995, about 5am I got the devastating news that my Grandpa had passed away. I wanted to die, too. I gave up on life which put me in this chair sooner, I didn’t care anymore.

In October of 1999, I dropped at of school in 10th grade then moved to Dawsonville, which was the worst mistake of my life. I went to a rehabilitation facility in Warm Springs, GA, and stayed there for nearly a month. The facility was not for me. In 2001, I went back to High School and actually GRADUATED with a Certificate of Attendence.

In 2006, I was talking to my brother, Tommy. He said that he had met a lady named Lynn Robinette, who has 2 children with FA. I was shocked because I had no idea other young people had it this horrible disease like I did. After talking with Lynn for a couple weeks, she helped me get the ball rolling in applying for the ICWP program.

 

Rest in Peace, Mindy.  You will now be dancing with Katie Loftin, one of your dearest friends with Freidriech's Ataxia.  Heaven has receive a sweet young lady which we have been honored to know.

Jenny

Jenny

Jenny was born on Dec. 1, 1972. She was born with spina bifida. She has been using a wheelchair since fifth grade. Her entire fifth grade class planned a field trip to Washington D.C. and having her disability prevents her from walking long distances. Though her disability presents its challenges, Jenny makes it through each day with a smile. Jenny has endured many surgeries and she lies without the feeling of her heart pumping so fast after running. Jenny was the 1982 Georgia March of Dimes poster child.

In the beginning of December of 2007, Jenny was in search of an adequate facility in which to live. She was looking to move in February of 2008. She found out about the Wishes 4 Me Foundation during this search. She currently resides in a Wishes 4 Me home, called Kate’s Home. Kate’s Home is an independent living home for physically challenged women. Other than the foundation providing a place for Jenny to live, Jenny has been made aware of Medicaid wavier programs that will assist her in fulfilling her needs and desires. Currently, within the house that Jenny resides, she has 2 roommates. The foundation provides a vehicle to transport the residents; therefore the women are hardly at home. Jenny enjoys getting out and interacting with the public. Jenny is a laid back individual. The Ladies of Kate’s Home are constantly laughing. They use a shared resource plan in scheduling their caregivers. By using the Shared Resource Model with their caregivers, the residents have the option to more coverage. Using the Shared Resource Model, the residents can have more privacy as needed and we are able to create a savings for the State of Georgia.

The Wishes 4 Me Foundation has enable Jenny to be more independent while providing a safe, affordable and fun environment. Jenny has been such a great asset to Kate’s Home. She brings such an inspirational personality into the home. Jenny takes all issues from her disability and turns it into an opportunity. God gives us no more than what we can bear. Jenny is a living testimony to God’s word. God definitely thinks of Jenny as being a very strong and special lady. Jenny does not let her disability get her down. Jenny is a conqueror. Jenny never has an issue, she only seeks opportunities daily. We are so blessed that she is a part of the Wishes 4 Me Foundation.

Jenny will be missed.  As of October 12, 2015, she joined one of her prior house mates in heaven.  Enjoy your forever life with no daily complications..  WE love you always.

 

Breona

Breona

Please remember Breonna’s family in your prayers. Breonna passed away on October 27, 2004 around 9:30 am after a 2.5 year battle with Bio Phenotypic Leukemia. She will be greatly missed.

Breonna is truely one of God’s Angels now … watch the stars there will be a very bright one shine at night … afterall even angels have their porch lights that shine … and Breonna’s shines bright.

Hi,
My name is Breonna Cooper and I am 12 years old. I had the life of a normal typical 12 year old kid until August 26, 2002. August 26, 2002, was a day which I will never forget. My mother took me to the doctor thinking I may have a sinus infection or strep throat. After drawing blood, chest x-ray’s and blood cultures, I was admitted into Emory Medical in Cartersville, GA. My hemoglobin was point 6. I needed blood. The next day I was transferred to Scottish Rite’s Hospital (Children’s Health Care of Atlanta). I believe that my doctor in Cartersville knew what was wrong but he would not diagnose me, he wanted me to see a specialist. My room was on the 3rd floor. This floor is for children with sickle cell, brain tumors and like me Leukemia. Yes, they told my mother I had Leukemia. For 2 weeks, they didn’t know what type of Leukemia that I had so they started treating me for ALL (Acute Lymphoblastic Leukemia). My body was not responding to the treatment. The treatment was not killing any of the cancer cells in my blood. The doctors came back and said they were going to treat me for AML (Acute Muelogenous Leukemia) and at this time they knew what kind of Leukemia that I had.

My diagnosis was eventually determined to be BPL (Bio Phenotypic Leukemia), a cross between AML (Acute Muelogenous Leukemia) and ALL (Acute Lymphoblastic Leukemia). The treatment is much harder than that of an ALL (Acute Lymphoblastic Leukemia) diagnosis. Since there is not a chemotherapy treatment for BPL, I have been receiving chemotherapy for AML.

AML (Acute Muelogenous Leukemia) chemotherapy has caused me to have a lot of side affects such as:

– Loss of hair
– The burning of the insides of my hands and the bottom of my feet to the point of not being able to walk for 3 or more days. The burning would cause blisters on my hands and feet preventing me from using them.
– Mucositis – Mucositis is an inflammation and ulceration of the lining of the mouth, throat or gastrointestinal tract most commonly associated with chemotherapy or radiotherapy for cancer.
– Legions on my lungs
– Severe weight loss. I am 5’2″ and at one point I only weighed 92 pounds.
– Discoloration of my skin
– Mouth sore down through my esophagus into my stomach. I was not able to eat for nearly a month.
– I was in and out of PICU (Pediatric Intensive Care Unit) for several months.

The list goes on …

Through it all, I have learned to trust in Jesus. He has brought me through every time. After everything that I have gone through, I stand today in what the medical field calls remission, but I know that by the strips of Jesus, I am healed. Isaiah 53:3,4 and 5 states it and I believe it. The word of God was spoken over me constantly, prayers were prayed and Jesus answered.

I saw my mother cry in the midst of all of this and saying to me, “I’m crying because I don’t want you to go through this and it hurts my flesh but I want you to know, we do not walk in the flesh, we walk by faith and not by sight. These tear have not changed my faith.” She was continuously telling me to hold on and not to give up and “God has brought you through and he took care of Leukemia on the cross. Leukemia has already been bore, we are just going through the process.” the doctors would come in and tell us things and I would look at my mom’s reactions. I can say there is not a lot that moves my mom. She stood by my side and is still standing. I remember one of my trips to the PICU because I was bleeding internally. the nurses were moving so fast. I looked at my mom cleaning and preparing to go to the PICU. She turned and looked at me in the middle of the move. Mom said, “Breonna look at me. Do I look upset?” I shook my head, “No.” Mom responded, “Then don’t let this upset you. Remember ..” Then I completed the sentence for her, “We are going through a process.” I then knew that I would be all right.

I am to have a Bone Marrow Transplant in February 2003. My mom and a lot of people are praying for me. Please keep me in your prayers.

Breonna LaShay Cooper

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Breonna and her family was the first family the Wishes 4 Me Foundation assisted. The foundation assisted Breonna’s family with expenses when Breonna’s mom was not able to work to care for Breonna. Breonna mom was the only income into their family. Financial problems followed the family when full time care was needed for Breonna. The foundation rounded up assistance from the community to help the family. Breonna’s Family did have a Christmas in 2002 filled with presents, prayers and a lot of love.

There are many ways to help people with disabilities. Financial assistance is always needed but volunteers, also, are needed to carry out the tasks. Please, contact us today to at admin@wishes4me.org or 770-982-0275.